About Us


The International Waldenstrom’s Macroglobulinemia Foundation (IWMF)  is a patient-founded and volunteer-led non-profit organization established in 1998. Our vision is to support everyone affected by Waldenstrom's macroglobulinemia (WM) while advancing the search for a cure. Since 1999, the IWMF has funded more than $20 million in global WM research. The IWMF is here for you and your loved ones to help you better understand WM, your options, and to offer education and support. An easy-to-understand patient information package on WM is available for immediate download at the IWMF website Library.

To become more familiar with the IWMF, explore the IWMF website and some of our signature resources

  • Attending IWMF Annual Educational Forums provides a unique opportunity for patients and caregivers to learn about the latest research and treatments in WM. It’s also a great way to network with other newly diagnosed patients and “veteran” patients who have been where you are now.
  • Joining IWMF-Connect for access to an online community offering a wide variety of moderated WM-related email discussions.  To participate, send an email to Julianne Flora-Tostado  julianneflorat@gmail.com
  • Calling or emailing an IWMF LIFELINE volunteer connects you with another WMer who has been in your position.  This peer-to-peer forum helps you to share experiences and get specific questions answered.
  • Contacting an IWMF Support Group Leader in your area.  Our Support Groups offer a supportive and confidential environment for people affected by WM, including patients, family members and caregivers to discuss concerns.

Remember that with the information, education, and support programs available through the IWMF, you are never alone.

Contact Us

6144 Clark Center Ave.
Sarasota, FL 34238



(914) 927-4963